Day 1 of infinity

To whom it may concern and to whom it may interest. I am going to write to you all about the life I have and the effect it has on me and the people I love.

I will start by telling you all that I am a married 24 year old male living in Tasmania, a state of Australia. I was married to a lovely lady in July 2005, her name is Elizabeth, but she prefers Liz, my name for her is Lilly though.

Lilly and myself bought a house in Tasmania about 23 months ago, we moved into this house about 11 months ago, the time between me and Lilly buying this house and moving into it we had it rented. However we have lived in this house for less than a year and we already have to sell it. They say that owning your own house is the great Australian dream. Well with that in mind I guess its safe to say that my medical condition has robbed me of this dream, for the time being at least…

I have a very rare condition called autoimmune polyendocrinopathy candidiasis ectodermal dystrophy. Abbreviated to APECED, or APS 1. To describe it in a few words it’s a pain in the neck. But they say life is what you make it and I fully intend to not be just a sufferer of APECED, instead I want to be known as James, a 24 year old male who has APECED.